Our One in a Million Children.

Our One in a Million Children.

Research team's provided insights into the rare disease ADSL deficiency. It can be somewhat comforting to know that even on our worst days of living on the front line of this disease with our children, we are not alone in our search for answers. I have found solace in our collaboration, knowing that we are not alone in our dream of one day we will find a cure, or a treatment that will change the lives of many children; and if we ask the right questions will we find the answers that could possibly save many lives well into the future. Read more...

The Adventures of Hamish and Shadow – Episode 1

The Adventures of Hamish and Shadow – Episode 1

From the moment these two connected we knew we were about to witness something very special. Read more...

“What happened to that boy, mummy?”

“What happened to that boy, mummy?”

As much as I wished my children were more like yours, I wish more, that your children learn empathy, to connect to children like mine.