Tag: metabolic disease

Our Rare Disease

Insights into the rare disease AdsL Deficiency

by Natalie Karen WatsonLeave a Comment on Insights into the rare disease AdsL Deficiency
Insights into the rare disease AdsL Deficiency

On behalf of all our families I'd like to say a huge THANK YOU to to all the research Doctors and scientists across the world that have been passionately involved in researching this disease over the years. I have found solace in our collaboration. Read More....

All Insights, Our Rare Disease

Our One in a Million Children.

by Natalie Karen WatsonLeave a Comment on Our One in a Million Children.
Our One in a Million Children.

Research team's provided insights into the rare disease ADSL deficiency. It can be somewhat comforting to know that even on our worst days of living on the front line of this disease with our children, we are not alone in our search for answers. I have found solace in our collaboration, knowing that we are not alone in our dream of one day we will find a cure, or a treatment that will change the lives of many children; and if we ask the right questions will we find the answers that could possibly save many lives well into the future. Read more...