Tag: metabolic research

Our Rare Disease

Insights into the rare disease AdsL Deficiency

by Natalie Karen WatsonLeave a Comment on Insights into the rare disease AdsL Deficiency
Insights into the rare disease AdsL Deficiency

On behalf of all our families I'd like to say a huge THANK YOU to to all the research Doctors and scientists across the world that have been passionately involved in researching this disease over the years. I have found solace in our collaboration. Read More....

All Insights, Our Rare Disease

Parental Insights into Adsl deficiency

by Natalie Karen WatsonLeave a Comment on Parental Insights into Adsl deficiency
Parental Insights into Adsl deficiency

An Invitation to all families to complete the following AdsL Deficiency parent survey. Read more...